Working With a Care Team
Pulmonologists, respiratory therapists, infectious disease specialists, and other providers all play an important role in bronchiectasis care, from diagnosis to long-term management.
Because this condition can be complex and requires ongoing attention, it’s essential to have a knowledgeable, collaborative team.
Working With a Care Team: Index
Finding Expert Care Through the Bronchiectasis and NTM Care Center Network
One resource worth exploring is the U.S. Bronchiectasis and NTM Care Center Network (CCN), an initiative of the Bronchiectasis and NTM Association that connects patients to expert centers specializing in bronchiectasis and NTM lung disease. The network is strengthened through collaboration across clinicians, researchers, patient organizations, and community partners, including support from NTM Info & Research and its nationwide support group community.
These centers aim to provide comprehensive care, patient education, and opportunities to participate in research through efforts such as the Bronchiectasis and NTM Research Registry.
If you’re unsure whether your current providers are part of the CCN, or if you want to explore care options near you, visit the Bronchiectasis and NTM Association center directory or speak with your pulmonologist about whether a referral may be helpful.
The right team can make a big difference. Coordinated, expert care may improve quality of life, support timely treatment decisions, create opportunities for education and participation in research, and help people stay actively involved in their health journey.
Access to Care Around the World
Although I live in the United States, this resource is intended for an international audience. I am well aware that many people living with bronchiectasis and NTM lung disease do not currently have access to expert care. Frankly, even within the United States, until the Care Center Network (CCN) continues to expand, there are regions that remain underserved, especially for people who face financial, geographic, or other barriers to traveling long distances for specialized care.
My hope is that over time, this concept of coordinated networks of care continues to grow, both in the U.S. and globally. Until then, many people may need to understand their disease well enough to partner with their local medical team and stay as healthy as possible by adopting practical self-care strategies.
That is part of why I created the BE CLEAR Guide, the BE CLEAR Book, and my YouTube channel: to help people better understand bronchiectasis and feel more informed, prepared, and supported wherever they live.
Key Points to Remember
No matter where you live, access to expert bronchiectasis care may look different. While networks like the Care Center Network offer hope for more coordinated care in the future, many people today are still navigating this disease with local providers, self-education, and support from others who understand.
My hope is that this guide helps you feel more informed, more confident, and better prepared to partner with your medical team and make decisions that support your goals and priorities.